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The Gene Guillotine: An Early-Onset Alzheimers Memoir is a 306 page memoir told in first person in the present tense. It leads the reader through the duration of early-onset Alzheimers disease (also known as young-onset Alzheimers) from the first symptoms as seen in the narrators mother, to personality changes, mental decline, death of a caregiver, placement in care facilities, the discovery of the gene that causes Alzheimers in their family, to the mothers final breath. This book shows love and compassion as well as the mental anguish, emotional toll, and the ugly side of Alzheimers. The narrator brings the reader into family discussions about her mothers strong living will and end-of-life wishes for this terminal disease. After her mothers death, the narrator describes her participation in research studies for familial Alzheimers disease, genetic counseling and wrestling with her decision whether or not to learn her own genetic status. It explores the feelings, fears and life choices of the narrator who knows she may also get this genetically inherited disease that has already claimed five family members. Keywords: The Gene Guillotine, autosomal dominant Alzheimers disease (ADAD), familial young-onset Alzheimers disease, familial early-onset Alzheimers disease, dementia, Noonan Family, siblings, generational, memoir, ethics, hospice, death and dying, caregiver death, caregiver stress, caregiver burnout, spouse death, genetics, genetic status, genetic counseling, genetic etiquette, genetic disease, anger, aggression, violent, living will, advance directive, right-to-die, end of life decisions, research, genetic testing, finding out, inherited, heredity, personal story, Kate Preskenis.
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Vânzător: Libris.ro
Brand: Kate Preskenis
